Monday, March 25, 2013
Shortcuts
I have been feeling more and more impatient lately. But that post is for another day...
Right now, in the few minutes I have, I want to focus on what one of the toughest aspects of having a food-allergic kid is, from a practical standpoint: Giving them a yummy treat when you have almost no time. I have encountered this situation a few times recently and have a few ideas. Let's say you just found out about a class party the next day, but are dog-tired and don't feel like baking a dozen cupcakes (or two or three). What to do? Here are 5 quick ideas:
1. Icing-dipped cookies. Buy safe cookies from the store - like Enjoy Life crunchy or soft cookies, Oreos, or animal crackers (Barnum's) and dip 1/2 of the cookie in safe store-bought icing (I have used Pillsbury icing or Betty Crocker cookie icing) and then in a bowl or plate of safe sprinkles. Put the cookies on foil or wax paper to set. I did this for my daughter's Valentine's party this year and the cookies looked so cute!
2. Chocolate-dipped cookies. Melt some safe chocolate chips in the microwave and dip 1/2 of each cookie into the chocolate and then into the sprinkles. To melt chocolate chips, put about a cup of chocolate chips in a bowl (preferably paper so you can throw it away afterwards). Heat on high for 1 minute, stir with fork, then heat on high for 30-second increments until chips are melted. You can cut the chocolate with a little bit of vegetable oil to make it a tad smoother (add oil before or after melting chips). Then dip the cookies. Who doesn't love chocolate-dipped cookies?
3. Icing- or chocolate-dipped pretzels. Buy safe pretzel rods, open a can of safe icing (e.g., Pillsbury), dip 1/2 of the rod into the icing, roll the icing-dipped pretzel on a plate of safe sprinkles, then put on foil to dry. I sent these to school for Ainsley's birthday and they got rave reviews. Alternatively, dip 1/2 of a pretzel (the bow-tie kind) in icing or melted chocolate and then dip in sprinkles.
4. Homemade chocolates. Melt chocolate chips in a bowl (see how in #2), spoon chocolate into candy molds, put in refrigerator until chocolate is set. You can buy candy molds at Michaels, Joanne's, most party stores, or on the internet. They are very cheap.
5. Chocolate-dipped strawberries. Wash strawberries. Make sure they are very dry! Melt chocolate chips (see how in #2). Dip strawberries in the chocolate and set on foil or wax paper to set. Add sprinkles if desired.
Right now, I am all about easy solutions. I hope these help you too.
Friday, August 26, 2011
Took a long maternity leave from the blog, but I'm back!
He was born in April and his name is Thomas Patrick, Tom for short. He is four and a half months old now and the light of our family. We adore him and, best of all, the girls think he is the best - they play with him constantly and he thinks they are quite entertaining.
I had a lazy summer, taking care of Tom and playing/swimming/reading/lounging with the girls. Now I'm back to reality - back at work and the older two back in school - and my mind inevitably shifted back to food-allergy issues because Ainsley has a new teacher, new classmates, etc. So this is what I've been doing in the food-allergy realm as of late that I've really enjoyed:
-went to two events sponsored by the new Food Allergy Center at Children's Medical Center, including a panel on food allergies and schools and a food-allergy cooking demonstration at a local Whole Foods.
-organized an informal dinner with other food-allergy moms, some of whom I knew and some of whom I didn't. Seven moms showed up! It was a wonderful time of sharing, commiserating, and bonding, and was so easy to plan.
-met with Ainsley's new teachers (her school combines grades 1 & 2 so she has two teachers) about her allergies, and am about to meet with the principal, counselor, nurse, and teachers at an official 504 meeting.
Ainsley is one week into school and so far everything is going well. The only changes from last year are (1) unlike kindergarten, first and second grade doesn't have snack time (HOORAY!!!), and (2) she is now carrying an epipen and Benadryl in a small shoulder bag/purse instead of the teacher carrying it (we also have epipens and Benadryl in the nurse's office). With each year, she has gotten so much more mature when it comes to taking responsibility for her own safety. So far she's been great about keeping up with the purse and she is very careful about what she eats and understands not to eat anything I don't okay. It is such a difference from the preschool years (especially 3 and under).
I hope to begin posting more often now that I'm back on a normal schedule. I missed this blog and connecting with other food-allergy parents.
Friday, March 25, 2011
Letting go a little
It all started a few weeks ago when Ainsley won a "good spirit" award for her class. As a reward, she (like every other kid who wins it) got a token for a free ice cream at lunchtime (every Friday the cafeteria serves ice cream). Her teacher called me that morning and asked if it would be okay if Ainsley cashed in her token for a popsicle, because the cafeteria had one kind of popsicle that had no milk or other allergens in it, and another child at the school who was also milk-allergic had previously had one with no problem. I took a deep breath and said "Yes," both nervous about what could happen and excited that Ainsley would get to try something new.
Thankfully, she had no reaction to the popsicle, and loved being able to eat it while her friends ate ice cream. So the teacher suggested that I allow her to buy one every Friday (have I mentioned yet how much I love her teacher? She truly cares about Ainsley). Today is the first day we've done it. I sent a dollar in her lunch bag and emailed the teacher to ask her to make sure Ainsley got the right popsicle and knew how to pay for it. Lunchtime is almost over now, and I've gotten no phone calls, so I am assuming everything went fine. I am so happy she's able to participate in the normal lunchtime routine in this small way.
Wednesday, March 23, 2011
Interesting reports from the American Academy of Allergy, Asthma & Immunology annual conference
- Kids may react to milk protein in DPT shot
- Drug speeds up milk allergy treatment
- Oral treatment best for milk allergy
- Many kids shake milk allergy as toddlers
- Oldest siblings hit hardest by allergies
- Cookies may help kids beat milk allergy
Regarding the last study, last summer our allergist instructed me to start adding very small amounts of milk and egg to baked goods and giving them to Ainsley on a regular basis because he said the research was showing this was a safe way to induce tolerance to these allergens (safe because she was able to tolerate some baked egg/milk when she was very young so we know she's not allergic to baked milk/egg in small concentrations). Still, I hesitated to do this because it feels weird to introduce these allergens to her diet - and because logistically it's harder to bake this way because I can't allow her to help me mix up the batter (because she would come into contact with the unbaked forms of these allergens) and would have to keep separate mixing bowls/utensils for this type of thing. But this study has convinced me that I have to start doing it ... sometime after the new baby arrives and I have some energy again.
Wednesday, March 16, 2011
Don't forget the easy stuff
In the meantime, I wanted to tell you something simple that I frequently have to remind myself - not all things related to preparing food-allergy friendly desserts need to involve ovens, from-scratch mixes, or hours in the kitchen. Just this week Ainsley proclaimed a new favorite dessert, one that takes approximately 30 seconds to make - the Root Beer Float. It started when we were on a short Spring Break vacation this weekend and stopped at a snow cone stand. This is another easy, no-bake dessert my kids love - snow cones. I have a little shaved ice machine at home (bought for about $25 at Target) so I have frequently made snow cones for them at home, but there is, of course, nothing quite like walking up to a little shack and ordering one. I have also found snow cones to be one of the few things that are almost always Ainsley-friendly, as long as she stays away from the flavors that have added cream.
So anyway, at this snow cone stand, Ainsley ordered an orange, Leighton asked for strawberry, and I got my favorite, cherry. My husband, however, is not a fan of snow cones, so he opted instead for a root beer float (the stand also sold ice cream). Ainsley was intrigued - she had never heard of this concoction before. She watched closely as Dave poured the root beer over the ice cream and went about consuming the treat, and wasted no time in asking if I could make her one sometime.
So the next day we went to a grocery store that sold coconut-milk ice cream (soy or any other kind of nondairy ice cream would have worked fine too, of course) and I bought a pint of vanilla plus a 2-liter of A&W. A minute after getting back to our hotel room, I prepared two floats for my two little dolls and watched as they gulped them down eagerly. Ainsley had one more after that, and then another for dessert that night. I thought she might not like the taste of root beer - boy, was I wrong.
So with summer approaching, you might just want to pull this one out of your bag of tricks to the amazement and delight of your kids. And don't forget the snow cones either.
Friday, January 21, 2011
A&J Bakery Valentine's Treats
Here is the page on A&J's Valentine specials in case you are interested. Please support this food-allergy friendly bakery!
Monday, December 27, 2010
My favorite Christmas present this year
Wednesday, December 22, 2010
Best dairy-free fudge EVER!
Natalie's Dairy-Free Fudge
20 oz (2 bags) Enjoy Life chocolate chips
1 can (15 oz) Cream of Coconut (she used the Coco Lopez brand, which she found at a regular grocery store - Cream of Coconut is used to make Pina Coladas so it may be on the same aisle as the alcoholic drink mixes)
dash of salt
1 1/2 tsp vanilla or almond extract
Optional add-ins: 1/2 cup of chopped nuts, dried cherries or other fruit, marshmallows, etc.
Melt the chocolate chips and cream of coconut over low heat until fully melted. Remove from heat and add remaining ingredients. Pour in a square baking tin lined with waxed paper and refrigerate until hard (about an hour). Allow to soften at room temperature for 10 min or so before pulling the sides of the waxed paper to remove the fudge from the pan in one big block. Cut into squares and store in a cookie tin or in the fridge.
* * * * * * *
One of the best things about this recipe is that it has introduced me to Cream of Coconut - I had never heard of it before! Natalie informed me that it can be substituted 1:1 for sweetened condensed milk. She has offered to use it to make her famous Key Lime Pie for our family after the new baby comes, and I am definitely taking her up on the offer!
Sunday, December 19, 2010
The gigantic holiday baking post!
First, in early November I had a craving for lemon bars. I had always wondered whether I could make a dairy- and egg-free lemon bar that tasted like the real thing, and I found a great recipe that allowed me to do that. Unfortunately, the pic I took (below) is not very good, but trust me - in person, the bars look practically identical to the lemon bars with which you are familiar.
Here is the recipe (which I got from here and altered just slightly):
Time-Warp Lemon Squares
Ingredients:
Crust:
1 cup all-purpose flour
5 tablespoons margarine (I used Earth Balance)
1/4 cup granulated sugar
1 1/2 tablespoons orange juice
Filling:
3 egg equivalents, prepared (I used Ener-G Egg Replacer)
3/4 cup granulated sugar
3 tablespoons all-purpose flour
1 teaspoon real vanilla
1/2 teaspoon baking powder
1/8 teaspoon salt
juice of 2 large lemons
zest of 1 lemon
Topping:
powdered sugar for sifting on top
Directions:
1. Preheat oven to 350 degrees. For crust: In a bowl, combine crust ingredients. Put parchment paper in the bottom of an 8 X 8" or 9 X 9" pan. Press crust mixture into bottom of pan. Bake for 15 minutes.
2. For filling: While crust is baking, mix together the egg substitute (follow directions of your brand) in a bowl until foamy. Add the remainder of the filling ingredients and mix together. Pour over the crust, and bake 18-20 minutes. When pan is done baking, take it out of the oven and put it in the refrigerator for at least an hour to cool and set.
3. After it is set, take it out of the refrigerator and sift powdered sugar on top. Then cut into about 16 bars.
* * * * * * *
Next was time for some Thanksgiving cookie fun. Ainsley's class was having a Thanksgiving feast at school and the cookies that would be served were not safe for her. So I made some cookies just for her, which were cuter than the ones the other kids ate! I got the idea from a Nick Jr. suggestion that showed how to make sugar-cookie turkey shapes by using your kids' hands.
For the sugar cookie dough, I used the Holiday Cut-Out Cookie recipe from Linda Coss's What's to Eat? (for link to book, see sidebar, "My Favorite Cookbooks") - this is my favorite sugar cookie recipe because the cookies hold together really well after baking. When using this recipe, I always add a little extra flour because I have found that if I don't, the cookies flatten out a little too much for my liking during the baking process. This time I only did a half-batch of the recipe because I was pressed for time and cut-out cookies can be very time-consuming!
Here is a pic:
After making the dough and rolling it out on a floured board, I made the turkey shapes by tracing my kids' hands in the dough using a butter knife. I drew a little triangle (for a beak) near their thumbs. After baking the cookies according to the recipe's directions (except I think I baked the cookies for only about 7 minutes instead of the longer period the recipe directs) and letting them cool, I began the decorating process. I should note here that I always bake cut-out cookies on parchment paper - then I never have to worry about them sticking to the cookie sheet.
I iced the cookies using Betty Crocker cookie icing (which is vegan and nut-free and dries hard to allow you to stack the cookies). I cut open a bag, poured the entire contents of the bag in a cup, and colored it orange with a couple of drops each of yellow and orange food coloring. I used a knife to spread the icing over each cookie; after I put the icing on each (and while the icing was still sticky), Ainsley stuck an eye on the turkey using Enjoy Life mini-chocolate chips and then added a gobbler using Welch's fruit snacks (strawberry or raspberry). Then she put multi-colored sprinkles on the turkey's tail-feathers. After the icing set a bit, I painted the beaks on using a little paintbrush and the rest of the icing in the cup, which I made a dark shade of pink using a couple of drops of red food coloring. Then I drew the feet on each turkey using chocolate Betty Crocker cookie icing (I used the nozzle that comes on each icing bag).
* * * * * * *
After Thanksgiving came Ainsley's 6th birthday party. As you may know, I try to go above and beyond when it comes to Ainsley's birthday cake because she can't eat anyone else's birthday cake all year (except for her sister's). This year she requested a Star Wars cake (she is a tomboy!) so I gladly obliged. I made a marble cake (chocolate/vanilla swirl) using the marble cupcake recipe from Vegan Cupcakes Take Over the World (for link to book, see sidebar, "My Favorite Cookbooks"). I doubled the recipe to make a 14-inch round cake.
I made the cake the day before her party and let it sit on my counter to cool in the pan overnight. The next morning I turned the cake onto a silver cake board I bought at a party store and started to decorate. I used Pillsbury chocolate and vanilla frosting (I like making my own frosting on occasion, but I found last year that the homemade frosting is harder to spread on a birthday cake than the Pillsbury is so I opted for store-bought frosting this year). I frosted half the cake with the chocolate and half with the vanilla (I used a ruler wrapped in Press and Seal and sprayed with oil to help me make the center dividing line). Then I used an icing bag with a shell-type nozzle to decorate the sides in the opposite color icing. Finally, I mixed the remaining chocolate and vanilla frosting together to make light brown icing for the words, which I piped on with a different (smaller, less fancy) nozzle. I added Star Wars cake toppers (Darth Vader and Luke Skywalker) that my husband found on the internet, along with star candles Ainsley picked out at the grocery store.
I got many compliments on both the look and the taste of the cake, and best of all, Ainsley loved it!
* * * * * * *
Then it was time to move on to Christmas baking. Every year I participate in a cookie exchange with some friends, and this year I made Choco-Cherry Spritz Cookies from Linda Coss's What Else Is to Eat? (for link to cookbook, see sidebar, "My Favorite Cookbooks"). I have made these before and the only problem I encountered was that they were crumbly after baking, so this time I added about 1 1/2 tablespoons of orange juice to the batter and that solved the crumbly problem.
Here is what they looked like - they were a big hit!Note: You will need a cookie press to make these. I have this one. I used a design that had a hole in the middle, but covered the hole with a little bit of dough prior to baking (if I hadn't, the melted chocolate that I put on the cookies after baking would have fallen through the hole). I love making cookie-press cookies when I need a lot of them, because you can really pound out a bunch of cookies fast with a cookie press. I will say that it takes me a couple of minutes every time to re-learn how to use the press (basically, I have to practice holding it down on the cookie sheet, pulling the trigger for about 3 seconds, and then pulling up the press to make the right-sized cookie). But after I remember how to do it, the process goes really fast. Again, I bake these less than Linda's recipe calls for - I only left these in the oven for 5-6 minutes. Also, unlike with the sugar cookies, I do not use parchment paper here - these don't stick to ungreased cookie sheets.
* * * * * * *
Then it was time for Ainsley's kindergarten Winter Party. At the beginning of the school year, I signed up to be one of the class party coordinators. Thus, for the Winter Party, I was in charge of all of the food. I brought fruit salad (which I bought pre-cut from Target) and Snowman cookies and asked another mom to bring a bag of plain Rold Gold pretzels. The kids loved the menu.
Here are the cookies we made at home:
To make them, I bought a snowman cookie cutter that I happened to spot at the grocery store and used Linda Coss's Holiday Cut-Out Cookie recipe again (adding extra flour to the dough as I did when I made the turkey cookies). Then Dave and I spread vanilla Betty Crocker cookie icing on each one. Dave and Ainsley were my assistant cookie decorators and they did an A+ job assisting me. After Dave or I would spread icing on a cookie, we'd hand it to Ainsley, who would add two Enjoy Life mini-chocolate chip eyes and a carrot-shaped nose made out of orange Betty Crocker fruit roll-ups (immediately before decorating the cookies I cut a fruit roll-up into several small triangles for the noses). Then Ainsley added three Fruit Loops to each cookie for the buttons.
After the vanilla icing set a bit, I took some chocolate Betty Crocker cookie icing and, using the nozzle that comes with it, drew a hat and a smile on each snowman. I left the cookies sitting on the counter overnight and by the morning, the icing was completely set and I was able to stack them and take them to school (note: it takes the icing at least 4 hours to become completely hard so don't plan on being able to stack the cookies right after decorating).
I actually made a double-batch of the cookie dough and, after we cut out the alotted number of snowman for baking, we made lots more cookies in various Christmas-y shapes (reindeer, stockings, Christmas trees, stars). After we decorated the snowmen, we drizzled some of the leftover icing (chocolate and vanilla) on these other cookies and then topped them with sprinkles and crushed candy canes. I put the cookies in little paper boxes I found at the Container Store and gave the boxes to each of the three kindergarten teachers at Ainsley's school because they all watch out for her with regard to her allergies. We also gave a box to the school nurse and to the counselor, who have been very instrumental in ensuring that things went well for Ainsley food-allergy-wise this year. (In addition, we gave a Target gift card to Ainsley's teacher, because she does the most with regard to ensuring Ainsley's safety and is also a wonderful teacher in general). Everyone really loved the cookie gifts and I was happy to show our appreciation for what they've been doing.
* * * * * * *
Okay, finally, this week I've had a hankering for Monkey Bread. A long time ago, on a morning show, I saw Paula Deen make it using pre-made, refrigerated biscuit dough, and thought, that looks safe for Ainsley! So during this week's shopping trip to Kroger, I scanned the refrigerated biscuit-dough section and found that Kroger-brand buttermilk biscuits are safe. They only contain wheat and soy. So I bought a four-pack and our adventure began.
Here is a pic of the Monkey Bread right after it came out of the oven: And here is a pic after I turned over the bundt pan onto a plate:
Paula Deen's Monkey Bread
(There are actually a few variations of this recipe on the internet, but the one below is what I used)
Ingredients:
1/2 cup sugar
1 teaspoon ground cinnamon
30 canned refrigerator biscuits
1 stick (or 1/2 cup) margarine (I used Earth Balance)
1/2 cup brown sugar
Optional: 1 cup chopped walnuts, pecans, or almonds (we used almonds because it's the one nut Ainsley's not allergic to, but the bread would taste just as good without nuts); raisins would also work well
Directions:
Spray a bundt pan with oil (I used Baker's Joy spray that has flour in it) and set aside. Preheat oven to 350 degrees.
Combine sugar and cinnamon in a big bowl. Cut refrigerator biscuits in half and toss in cinnamon and sugar mixture. Melt the margarine in a saucepan and add brown sugar and bring to a boil; then add nuts. Line the bundt pan with biscuits and pour butter mixture over them.
Bake for 20-25 minutes. Let sit for 5 minutes and then, while still hot, turn over onto plate.
This is a GREAT recipe for your kids to help with! Ainsley practiced her scissor skills by cutting the biscuits in half, and my 2-year-old helped by using her hands to mix up the cut-up biscuits with the cinnamon-sugar mixture.
* * * * * * *
Time will tell if this baby comes out weighing 12 pounds because of all of the baking I've been doing! I hope you will use some of these recipes and enjoy these goodies yourself. One last thing I want to mention - I am not a baking superstar. I am a regular mom who has had no special training (not even a cake-decorating class) and have learned by doing. The important thing to know is that YOU CAN DO ALL OF THIS TOO! Just try some of these things! Your kids will love you for it and think you're the most amazing mom (or dad, or grandparent) in the world.
And last but not least, I want to wish each of you Happy Holidays and hope that your family is able to enjoy much of the great food this season has to offer despite your or your family member's food allergies!
Friday, December 10, 2010
Short update - a *good* dairy-free queso & great vegan blog!
The vegan blog is called Chef Chloe and is here. She won Cupcake Wars on Food Network with a vegan Raspberry Tiramisu cupcake. A lot of her desserts look pretty simple to make and include things like vegan whipped cream, which I have always wondered how to make.
Thanks for the tips, Annette! I cannot wait to get the vegan queso in the mail!
Monday, October 18, 2010
New restaurant in our line-up: Chipotle
My husband and I have been eating at Chipotle for years but for some reason (well, fear, clearly) I had not tried to determine whether Ainsley could eat anything there (we had taken her there but had always brought food from home or from a fast-food place for her). But my babysitter is braver than I am and last time she went there, she asked about the company's food-allergy friendliness. Low-and-behold, it is very sensitive to and accommodating of food allergies. It has a chart online (and also one you can request in the store) that shows what food components contain allergens. As you can see from the chart, the only thing a kid with nut, peanut, milk, egg, and sesame allergies can't have is the cheese and sour cream. And the workers make the food right in front of you so you can watch to make sure they don't accidentally include any allergens in what they're making for you.
So we took Ainsley there the other night and ordered a kid's "Taco Kit," which is a divided plate that comes with two tacos and some sides. On the plate, we asked for the shredded beef (barbacoa), pinto beans, rice, guacamole, and lettuce. Then she sat down and got to put the tacos together herself using the different components, which she thought was really fun.
I am thrilled to say that she thought the tacos were really yummy and had no allergic reaction.
Note: The only special accommodation to request when getting food at Chipotle is for the preparer to put on a new set of plastic gloves before preparing the food tray because the old gloves could have cheese residue on them.
Happy eating - I know where we'll be chowing down at least one night a week!
Wednesday, October 13, 2010
So we're having another one!
So you food-allergy minded people might be wondering what I'm doing this pregnancy to try to prevent this baby from having allergies. Well, nothing really. With Leighton, I avoided the foods that are likely to cause life-long allergies (fish, shellfish, peanuts, tree nuts). But the research on avoiding allergens while pregnant/nursing is very mixed and Leighton didn't turn out allergic to that stuff or to the allergens that I continued to eat (eggs, milk, wheat, soy) so I don't really think my avoiding those foods made a difference. So this time I'm eating like a normal person, although I don't eat a lot of the life-long allergens anyway (I don't care that much for fish and of course I'm not around a lot of peanuts/tree nuts) so I doubt the baby's getting much exposure to those foods.
Another question you might have is why on earth would my husband and I want another child when (a) taking care of one food-allergic child is so time consuming/expensive and (b) the new baby might also have food allergies, meaning double the trouble. I can understand this viewpoint and have heard at least one other food-allergy mom say her child's allergy was part of the reason she decided not to have a third baby (the allergic child was her second). But my strategy with food allergies has been that it is not going to limit Ainsley or our family. That means we will do everything we can to make sure Ainsley gets a normal childhood (goes to a regular school, goes on YMCA Adventure Princess campouts with her dad, etc.) and that we also don't let food allergies determine our family size. Sure, a third child will mean more work - on top of the special things I have to do to keep Ainsley safe - but somehow we've made our current situation work, and work well. I have never for a minute regretted having Leighton, and Ainsley adores her too, and I know it will be the same with the next baby ... even if this one has food allergies.
Of course, we will be very disappointed if the baby has food allergies - undeniably, life is easier when a kid doesn't have them. But if that happens, life really won't be that much different or harder UNLESS the baby is allergic to wheat and soy, the two things Ainsley eats the most. I just have to hope for the best, and keep reminding myself that siblings of food-allergic children have only a slightly increased risk of having allergies (10% greater risk than other kids). The likelihood is that the baby won't have allergies, and if he/she does, I would think they're likely to be to the foods to which Ainsley's allergic. If that's the case, we're well-equipped to handle them.
And one day there will be a cure, and all of my children will be able to eat whatever they want, and none of this food-allergy talk and worry will matter anymore :).
Thursday, September 30, 2010
First elementary school fundraiser: selling cookie dough that contains nearly all of Ainsley's allergens
So far she's sweet-talked my mother into buying some even though my mother never eats cookies except when she makes them for her granddaughters (my two girls), and thus has no use for cookie dough that Ainsley can't have. She also got our babysitter to buy a few packs. Despite her pleading, I am not going to buy any - I just can't imagine having cookie dough around that she can't have.
I am very happy she's taking this so well and is excited about it rather than sad she can't have the dough. This will make it easier when we have to sell girl scout cookies in a few years, I guess.
Thursday, September 16, 2010
We have had the first allergic reaction of the school year ... and it didn't happen at school
As I've explained before, I hate taking Ainsley to birthday parties. It is a hassle for me, as (on top of getting the birthday kid a present) I have to pack a cupcake and something else for Ainsley to eat, depending on what food will be at the party. But when Ainsley started kindergarten I decided to take her to more parties so she could socialize with her classmates, with whom she'll be going to school for the next several years. The first birthday party of the school year happened two weeks after the start of school. It was for a sweet little girl whom Ainsley hardly knew, at a barnyard close to our house. The barnyard was really a petting zoo. Attached to the petting zoo was a party room where the cake and other food was to be served.
As soon as we arrived, Ainsley started jumping in a bounce house that was by the petting zoo. After she tired of that, she wandered over to the petting zoo and began petting the bunnies, goats, and miniature horses. She did that for about 10 minutes and then went back to the jump house (after I put sanitizer on her hands).
A few minutes later, Ainsley started crying in the bounce house because she'd landed wrong on her ankle. When she climbed out so I could look at the ankle, I immediately noticed lots of raised hives on her forehead. They were all near the same location so the result was that most of the center of her face looked horribly red and swelled. I instantly forgot about the ankle and got into allergy-parent mode. I knew right away what had happened - the animal food must have had nuts in it, and she must have gotten residue on her hands from petting the animals and then spread it to her face.
I took her as fast as I could to the bathroom, where I gave her two teaspoons of Benadryl and began washing off every part of her exposed skin. I then washed off my arms, legs, and face and did the same for my 2-yr-old, who was with us. I was so relieved that Ainsley was exhibiting no internal symptoms. The hives on her face looked nasty, but at least she didn't need the Epi-Pen.
As soon as I washed all of us off, I explained to Ainsley that we had to leave the party because she couldn't be around the residue anymore. She was so upset - she started crying hysterically, because she wanted to stay. This is one of those times when I kept saying over and over to myself, "Food allergies really suck." What a cruel condition to have, that keeps your kid from enjoying or even staying at a birthday party.
I walked back to the party quickly to thank the host for inviting us and to explain why we had to leave. Then we hurried out of there and went home, where I had all of us immediately strip down and shower. I then threw all of our clothes into the wash and hosed off our shoes. It's funny how contaminated I felt at that moment - like I had rolled around in toxic waste. What a strange life we lead.
Clearly, I re-learned my lesson about birthday parties. We'll certainly never go to another one at that barnyard, and I will be even more careful around petting zoos (we'd never had a problem at one before, but I knew it was possible). And next time we get invited to a birthday party, we'll go if it's for a good friend of Ainsley's; otherwise, we'll just stay home.
Ainsley about 20 minutes after she got the Benadryl and was washed off. It actually looked worse before that.
Allergy letter to parents of other kids in Ainsley's class
The letter (front side):
Dear Parents:
A student in your child's kindergarten class this year has a severe food allergy to peanuts, all tree nuts (cashews, pecans, walnuts, pistachios), sesame seeds, eggs, and milk. We are distributing this letter to the parents to help you understand this situation and to help foster a safe and worry-free year for this student and his/her parents.
This student's allergy can be life-threatening and the student carries an Epi-Pen at all times. We need your help in maintaining a nut-free, egg-free, and milk-free environment in the classroom and ask that any classroom snacks or treats that you send be nut-free, egg-free, and milk-free. The allergy can be triggered not only by directly eating or coming into contact with the above but also by exposure to foods that contain any peanut/nut traces, oils, flours, or food that is processed in a plant with peanuts, nuts, eggs, and milk or sesame seeds. For this reason, most pre-made cookies, prepared cookie dough, and cookie mixes are off limits. Also, many bakeries use nut products, flavorings, or oils in their facilities or products. if you are sending in any type of classroom treats, please notify the teacher in advance so that arrangements can be made to ensure the allergic student has a safe snack or treat.
We want you and your child to understand that the student's allergy can be triggered even by ingesting or exposure to very small amounts of the above allergens. I will talk with the students in the classroom to discuss ways they can help keep the classroom safe, such as always washing hands after lunch or snacks, not bringing snacks with these allergens, etc.
The school realizes that helping us to maintain a nut-free, egg-free, and milk-free classroom takes a certain amount of effort and diligence on your part, and we thank you in advance for your cooperation in helping us maintain a safe, healthy environment for all of our students. If you have any questions, please feel free to contact me at the school.
Sincerely,
[The school nurse]
Back side:
This is a list of recommended snacks that are free of milk, eggs, peanuts, tree nuts, and sesame seeds. The list below is not exhaustive and there may be more options. Please note that it is important to read the label as manufacturers are required to list the eight major potential allergens in bold type in or after the ingredients list.
Fresh Snacks
Fresh fruit
Raisins – plain only (not covered in anything else, like yogurt or chocolate)
Prepared Snacks
Bagels – Thomas brand only (original, cinnamon/brown sugar, blueberry, & whole wheat
flavors only)
Ritz Crackers (Nabisco) -- Original, Whole Wheat, Honey Butter, Hint of Salt, or
Roasted Vegetable flavors only (no Ritz Bits please – Ainsley is allergic to all types of them)
Ritz Muchables Pretzel Thins (Nabisco) – buttery flavor only
Wheat Thins (Nabisco) – original flavor only
Triscuits (Nabisco) – original flavor or reduced fat original flavor only
Triscuits Thin Crisps (Nabisco) – original flavor only
Teddy Grahams (Nabisco) – honey, cinnamon, chocolate chip, and chocolate flavors only
Honey Maid Graham Crackers (Nabisco) – original, honey, or cinnamon flavors only
Saltines (Nabisco) – plain or multigrain flavors only
Premium Soup & Oyster Crackers (Nabisco) – original flavor only
Keebler Original Club Crackers – original or multigrain flavors only
Keebler Town House Crackers – original flavor only
Keebler Grahams Bug Bites
Keebler Scooby Doo Graham Cracker Sticks – cinnamon or honey flavors only
Lorna Doone Shortbread Cookies (Nabisco)
Barnum’s Animals Crackers (Nabisco)
Ginger Snaps (Nabisco)
Rold Gold Pretzels (including thins, sticks, tiny twists) – plain flavor only
Rold Gold Braided Twists – honey wheat flavor only
Quaker Quakes Rice Snacks -- apple cinnamon flavor only
Good Health Natural Foods Veggie Sticks / Veggie Chips
Pirate’s Booty – veggie flavor only (not the kind coated in cheese)
Snapea Crisps (by Calbee Snack Salad) – plain flavor only
Sun Chips – original flavor only
Cheerios – plain and multigrain flavors only
Frosted Mini Wheats (Kelloggs) – original flavor only
Oreo Cookies – original kind only
Stacy’s Pita Chips – plain or cinnamon sugar flavored only
***********
I would love to say that all of the parents have diligently paid attention to this snack list and sent only safe snacks, but in reality I think some of them didn't read the letter at all and I know that at least a few have sent things like string cheese that are clearly unsafe. There is really nothing I can do about that as this is all about voluntary compliance. I do think that the kindergarten teacher doesn't serve certain things if they are brought, like peanut butter crackers, because she knows how much we fear those foods in particular (she has a few back-up snacks in her classroom).
I have already had to send a reminder/clarification email to the class parents because at Meet the Teacher night Ainsley's teacher mentioned that she had a child with a peanut allergy in her class and didn't mention Ainsley's other allergies. Some of the later questions from parents made clear that they thought Ainsley had only a peanut allergy. My follow-up email is below:
Hi fellow class parents,
For those of you who attended Meet the Teacher last night, I wanted to clarify that my daughter, Ainsley, is severely allergic not only to peanuts, but also to tree nuts (such as cashews, walnuts, etc.), dairy, eggs, and sesame seeds. That is why the letter the school nurse sent home about Ainsley listed all of those items as allergens, and that is why the suggested snack list on the back of that letter listed only foods that do not contain any of those allergens (if any of you did not see the suggested snack list on the back of that letter and no longer have the letter handy, I'd be more than happy to send a copy of the list to you if you let me know). We feel it is important for the snacks the other kids eat not to contain any of her allergens because it is so easy for the residue from those snacks to get on everything in the classroom since it will be on all the children's hands and they often eat the snacks in class.
It is true, however, that at lunch Ainsley can sit by other kids who are eating dairy, eggs, and sesame - she just can't sit by kids eating things like peanut butter & jelly because those sandwiches can be messy and the peanut butter (or other tree nut butter) might get onto her eating surface. Thus, the teacher checks the other kids' lunches and puts kids who do not have peanuts/peanut butter or tree nuts/tree-nut butter in their lunch around Ainsley.
As for birthday celebrations and parties, we definitely don't mind if you send treats that contain dairy and eggs as this wouldn't be an everyday thing like snacks (and it is so hard to find tasty treats that don't contain dairy & eggs). We would, however, appreciate it if you would avoid sending treats with peanuts/tree nuts in them as we would like to keep peanut/tree-nut residue from the classroom because it as particularly potent in terms of setting off an allergic reaction. Ainsley will have her own separate treat on those days so do not worry about her being left out!
Thanks so much for your understanding, and please don't hesitate to contact me with any questions.
Friday, August 20, 2010
Ainsley's 504 Plan
So here are the important parts of the 504 plan that I wanted to share with everyone. I am not pasting the entire thing because it is very long and some parts simply describe Ainsley and her health history, etc. Here are the important parts:
SCHOOL ACTIONS
-Perfect Measure Children’s Benadryl x 2 will be in the insulated bag in the classroom and in the clinic.
-Epi-Pen Jr. Dual Pack x 2 will be in the insulated bag in the classroom and in the clinic.
-Home supplied safe snacks will be kept in the classroom and in a freezer in the cafeteria (e.g., cupcakes in case a child's parent sends birthday treats for the class).
-Home supplied lunch box will be kept separate from other children's in the classroom.
-The school will send out a district letter to the entire class informing of student’s allergy including recommended snacks.
-The school will provide a safe environment in the classroom through education of food allergies and its effect [the first week, the nurse will show the Alexander the Elephant movie to the class and talk to the kids about food allergies, no sharing food, etc.].
-The school will provide a designated table adjacent to a regular table that will be cleaned by assigned staff prior to schedule lunch time. Cleaning will be with “Break Up” a high level cleaner that breaks up protein, animal fat and grease.
-The child will sit in a designated seat at the end of the table with students peanut/nut-free sitting around her.
-Student or teacher will carry the insulated bag with Epi-Pen and Benadryl so that it will remain with her at all times.
-HVAC in the clinic will maintain constant temperature year around from 68°-78°.
-Nurse or teacher will provide hand washing education to the class at the beginning of the school year.
-Student will wear a medical alert bracelet.
-Procedure to follow for field trips: (a) Teachers will notify the school nurse in advance of all field trips. (b) Arrangements will be made with parent, nurse, and anaphylactic trained staff to ensure student’s supplies accompanies the student to the event. (c) A copy of the student’s Quick Reference Emergency Plan will accompany the trained staff.
-Training for school personnel: Student’s teachers and other staff employees will receive annual education regarding the student’s allergy. This includes general information, signs and symptoms of anaphylaxis, administration of Benadryl and administration of epinephrine, Universal Precautions, resources available when questions/problems arise, and emergency measures. All staff members who will have direct contact with the student will receive a copy of the Quick Reference Emergency Plan. In addition, the student’s teachers will receive a copy of the IHP. This training will include substitutes/ IHP in the substitute folder when assigned to the classroom.
************
As you can see, the plan is pretty detailed and I am very happy with it. I take no credit for it - it is pretty much word-for-word the same as that of a peanut-allergic child going into the second grade whose mom revolutionized the school in terms of making it food-allergy friendly.
A couple of things about the plan: (1) It states that Ainsley will eat a separate snack from the other kids. The school has one child bring in snacks for the whole class each week. The school is sending out a "safe snack list" to parents of her classmates that lists only snacks that are safe for Ainsley. I thought about allowing her to eat the snack another kid brings in as long as it's on the safe snack list, but then I got nervous about it and decided that, for now, Ainsley will eat her own snack regardless of whether the class snack is also safe for her. Right now I'm too antsy about the possibility about ingredients changing/teacher accidentally giving her something that's not on the list/etc. Nevertheless, I am thrilled the school is sending out the safe snack list I sent them because that means that, at least most of the time, the class snack will likely not contain anything Ainsley's allergic to and therefore her allergens won't be spread around her classroom (they eat snacks in class).
(2) I also contemplated allowing her to sit next to anyone, not just kids who don't have peanuts/tree nuts in their lunch. But then I got nervous again and decided to play it really safe this semester and see how things go. Thankfully, Ainsley's best friend is in the same class as she is, and I bet they will want to sit together every day, so there's one kid I can count on who won't have peanuts/tree nuts in her lunch. Note that Ainsley is NOT sitting at a peanut/tree-nut free table. Her table will be cleaned with a special cleaner that breaks up food proteins, but she will be sitting at the same table as kids eating peanuts/tree-nuts (and eggs and milk). But she will be sitting at the end of the table so she will only be sitting next to one child and across from one child. The teacher will check the lunches of those two children to ensure they are peanut/tree-nut free.
(3) You might also notice that the plan specifically provides that the nurse's clinic will be temperature-controlled at all times. Unfortunately, the classroom won't be. That is why I bought an insulated container for the medication we'll keep in the classroom.
(4) Another important part of the plan is the provision for the training of substitute teachers. My greatest fear is that a substitute will accidentally give something to Ainsley that she's allergic to (like a snack, birthday treat, etc.) Thankfully, Ainsley is very aware of her allergies and I feel confident she wouldn't accept anything like that from a substitute. Still, I wanted to ensure that the substitute knows about Ainsley's allergies. So, under the plan, the staff is to notify the nurse before the start of school that a substitute is in Ainsley's classroom. The nurse will then make sure the substitute knows there's a child with food allergies in the classroom and will train him/her on how to administer emergency medication, including the Epi-Pen.
Any questions/concerns/suggestions? Please let me know! This has been a real learning experience for me, but so far I'm thrilled about how it's turned out.
Monday, August 16, 2010
Getting ready for Kindergarten!
Monday, August 2, 2010
Loosening up
Now that Ainsley is 5 and is very good at telling me as soon as she thinks she's having an allergic reaction (usually itchy mouth is the first indicator), I have begun loosening up a little. When we were on vacation in Michigan, I allowed her to eat a cheese-free pizza from a place that assured us their crust was safe for her - thankfully, she loved the pizza and had no problem. I am also allowing her to eat McDonald's chicken nuggets now because even though they contain a slight bit of milk, they don't cause any allergic reaction (this is per my allergist's recent advice that we can start introducing certain cooked/baked things containing very small amounts of milk or egg).
This weekend we introduced a new restaurant to her - Papa John's Pizza. Dave has a love of Papa John's that goes back to his college years, when he discovered he could get bacon (not Canadian bacon - real bacon) on a Papa John's pizza. He introduced me to it in law school, and for years our favorite road-trip food was bacon and pepperoni Papa John's (delivered to whatever cheap motel room we were staying in).
Now that I'm feeling braver about trying new things with Ainsley, I had him check to see if Papa John's crust was safe for her, and low and behold, it is - the thin crust contains milk but the regular crust does not. We ordered a small cheese-free pizza for her with bacon and mushrooms and she went to town on it.
I can't express how liberating it is to be able to give Ainsley new kinds of restaurant foods. These good experiences have encouraged me to talk to other restaurants to see if there are things at other restaurants that are safe for her. She loves trying new things and we love seeing her life is get a little bit more normal.
Friday, July 30, 2010
Conquering Starbucks
Of course, we have always stayed away from the fresh-baked items behind the counter there because all of them contain things (egg, milk) Ainsley can't eat and there are also cross-contamination issues with the nut-containing products. And I would never think of giving her the coffee, not only because she's 5 but also because sometimes the coffee beans have been roasted with nuts. Usually, my friends get their kids little drink boxes of Horizon chocolate milk there, but that's out for us because of Ainsley's dairy allergy. Needless to say, I was always at a loss in terms of what I could order for Ainsley so we usually stayed away from the place (in a pinch I would get her a bottle of fruit juice, but she was never excited by that).
Recently, however, my babysitter took the girls into our local Starbucks to get something for herself and found that it was now stocking packages of Lucy's cookies, which are free of egg, milk, and peanuts/tree nuts (they are also gluten-free). The manager also assured her that it would be safe for Ainsley to have a cup of soy milk (poured straight from the container into a clean cup) with a shot of vanilla flavoring for extra pizzazz.
Ainsley has loved ordering the cookies and the soy milk and now says that Starbucks is "one of her favorite restaurants." It would quickly jump to the top if it gave out toys with its food like McDonalds.
If you have a child with the same allergies as Ainsley, you might want to give Starbucks another look - it seems that it is making an effort to reach out to food-allergic individuals.
Wednesday, July 28, 2010
Bathing in almonds
I also ordered a 3-jar supply of Barney Butter (almond butter made in a nut-free facility) from Amazon. I found that Amazon deeply discounts this product if you sign up to have it shipped to you on a regular basis. I signed up for an every-two-month supply of 3 jars and it reduced the price from $23.08 + shipping to $19 with no shipping cost.
Unfortunately, we received the results of Ainsley's allergy tests and they showed that her numbers to all of the other allergens are about the same. The allergist did give me the green light to incorporate very tiny amounts of milk and/or egg into baked goods, however, to see if Ainsley can tolerate it (a long time ago she used to eat things with egg and milk baked in so I'm not worried about a severe allergic reaction with this sort of thing). He feels that now that she is 5 and can tell me quickly if her mouth is feeling itchy or she otherwise feels funny that it is an appropriate time to see if we can incorporate some of this food into her diet in a way that is unlikely to cause a serious allergic reaction. It is going to be so weird to start cooking with those things again!